Contributor

Erica Barnes

Founder, Chloe's Fight Rare Disease Foundation

I am a patient advocate, educator, and founder of Chloe's Fight Rare Disease Foundation.

July 10, 2017

Open letter to the Judge presiding over Martin Shkreli trial

June 9, 2017

Medicaid Is A Lifeline For Children With Rare Diseases

March 7, 2017

President Trump, in honor of Rare Disease Day recognize the international medical community

May 3, 2017

Prince Deserves to Be Remembered as More Than Just a Rock Icon

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December 6, 2017

February 29th is Rare Disease Day: 4 Reasons You Should Care

February 8, 2017

An Open Letter to Martin Shkreli and Nancy Retzlaff

September 28, 2016

No Pharmaceutical Tycoon Should Get Rich Off the Disease That Killed My Daughter

June 18, 2016

The Zero Sum Happiness Game (Or, What I Want My Daughter to Know About Being Human)

May 13, 2016

Finding a Name