Saved by faith. Lawyer by profession. Writer by passion. Rare disease advocate by necessity.
Melissa Hogan, JD is the creator behind ProjectAlive.org, which has garnered international and celebrity support for a cure for Hunter Syndrome, the rare disease affecting her youngest of three sons. She is a frequent speaker on rare disease and patient engagement and founded Saving Case & Friends, a Hunter Syndrome research and advocacy foundation. She also serves as a Patient Representative to the U.S. Food and Drug Administration, and on various rare disease boards. She blogs at MelissaHogan.me and in her spare time, writes music on her back porch outside Nashville. Connect with her via @melissajhogan.