Ugh, what a week.
A week of pain.
A week of waiting.
A week of drama.
A week that's finally over. Hallelujah!
After my last post on Friday, No More Humira for Mary, my weekend was spent celebrating part 3 of Halloween 2016. To say this year was epic would be an understatement. I believe a few traditions may have been started and I am already looking forward to next year. #blessed
In between the celebrations, my poor Philip had to work the weekend, and most evenings this week as well. His nights and weekend were spent waiting for fires and fighting fires because Kentucky has been so dry lately. He even got sent to a few real, and quite large fires. Yikes. Luckily, we got some much-needed rain on Thursday, so let's hope for more rain this weekend.
On Monday, I completed another week's worth of homework, bringing me another week closer to finishing this degree. It is difficult fighting to feel well enough to do it for another 7 months, the motivation is lacking. This is mostly why I haven't been back to cosmetology school in Kentucky, because I cannot plan to feel well for 3-4 months, guaranteed, and every day missed is more fees due upon graduation. I cannot plan to feel well and have a normal person schedule, there's too many doctors to call and doctors to see right now.
If all goes well with our next treatment plan, then I may finish my bachelor's degree sooner by doubling up course work if I can. I may begin class in January for a phlebotomy course. I figure if I am going to be at the VA and other doctors offices for the rest of my life, making visits more than often, I may as well learn about a few things and get a job working in a hospital. All while I continue to write, of course.
The class would be 2 weeks and I would be certified to work. Pretty sweet and exciting deal, if you ask me. Setting a goal for January is a big deal, so we shall see how I feel then.
Tuesday I was supposed to see mental health, to visit with my new therapist, for my second appointment. When I checked my online appointment calendar, the appointment had been placed at the wrong time, at 1PM instead of 3PM. I tried to reschedule it for the same day, but they could not get me in for another week. So, instead of seeing him this week, I will see him next week on Tuesday.
On Tuesday evening of this week, Philip had to work fighting fires until around midnight, so thank goodness I sleep wonky and I was up when he finally got home.
Wednesday afternoon, what would have been Humira #5, was instead my repeat blood draw.
Along with the ordered blood tests, some stool tests like calprotectin and c-diff were ordered, too. These look for inflammation in the bowels, so I tried to get the best samples possible.
Wednesday, and all week really, I have been suffering slight chest pressure again. It feels as though someone is just sitting on my chest, and so I chalked it up to the Humira still in my body. We were hoping that it would be out of my system considering another dose was due. By Wednesday afternoon, we were contemplating going back to the ER for another chest pain visit, but instead, I called my GI nurse, who told me Dr. S would call me back. She never did. Go figure.
Thursday came with another day of chest pressure, but I began having a brand new type of pain. Yay me? My right breast, in between my breast and my armpit, that flat side of your chest/breast where I assume the lymph nodes are, it began having sharp ripping/tearing/burning pains. The first time it happened, it came out of nowhere and I was instantly in tears.
This pain isn't constant, but rather comes and goes, shocking me every time. It feels as though someone is ripping my muscle from the inside or like someone is taking a knife to my breast, peeling back at the muscle. I can't explain it any better, it is like nothing I have ever felt before.
I move my arms with no pain, though. I have a full range of motion. I felt myself, and I even had Philip feeling both of my breasts, and there's no changes or differences in the two. But all of a sudden, the pain will come, ripping at my chest for a few moments, and then it's gone. We spent Thursday wondering if I should go to the ER, again, too. We decided if it continued or got any worse, that I would call the VA ER nurse, and see what they suggest.
Waking up this morning, Friday, I had been up and down throughout the night, like I do most of my evenings and early mornings. I woke up at one point and I was dripping with sweat, with a migraine pounding at my left side of my head and inside my left eye, so I took my Fioricet and tried to lie back down. I think I slept a little while until Philip woke me.
This morning Philip asked how my breast pain was, and before he could finish or I could reply, another ripping pain sent a shock through my chest and ripped at my breast. I had been awake a matter of minutes, already suffering pains. It has happened more today than yesterday, so much so that I called the ER nurse this morning, and I had to wait for them to return my call. The ER is better about returning calls, so I did mention the chest pressure from Wednesday, too. If anything, another ER trip would be, and was, requested.
I swear I cannot win for losing. I keep gaining new problems without seeming to fix the old ones. With chronic illnesses come more problems. You cannot just have one issue, they come in pairs, or trios, or more, each month adding more to your plate before you can handle what you have in front of you already.
It had been one month since my last ER visit, (Monday marks a month, technically) and I cannot believe I am still suffering from chest pains with these new pains. Trust me, it is a lot to deal with, whether you understand or not. I do not enjoy any of it. There is no positive from this.
Before I could post this for my Friday post, my nurse, and primary care doctor, Joanna called me back, and they both had agreed that another trip to the ER was probably best. Chest pains are never normal, so I am writing this paragraph as I lie in the hospital bed at the VA.
We checked in, immediately got taken back to a room, and blood tests were done, with some chest x-rays, too. Now we wait for everything to come back, to hopefully figure out why I keep having these pains. Not only do I suffer, but Philip and I hate to waste a day in the ER, like anybody else.
And we got no real news from the ER visit. We were in and out in about 3 hours, and nothing came from it except some Indocin and Flexeril - muscle relaxers and a type of Advil, which I don't/won't take anyway. I didn't have a heart attack, I probably don't have a blood clot, but I should return if it worsens. Once this is posted, I will try to lie down again.
We think my pains could possibly be residual from the Humira, but a consult for a mammogram was ordered, and the ER doctor suggested contacting GI, again, about the pains. I will expect a call Monday or Tuesday about my blood draw and chest pains this week, so I will fill them in when they do.
After the ER visit, we stopped to get lunch, which was a bust, because I puke it up anyway. I have been on the steroid, Prednisone, for around 9/10 days, and I am still hurting and having issues. We are baffled it has not helped bring relief, yet.
November welcomes month #4 of vomiting spells. Oh, how fun it is to be me. The comment on this photo is because someone actually accused me of inducing the vomiting with food. I don't think they realize what kinds of food, and what little I am eating. Everybody is a doctor, it seems.
There has been some online drama this week, as always. It wouldn't be a normal week without some form of cyberbullying, online harassment, and some texting chaos, too. The people involved don't deserve to be mentioned by name, but here's a shout out to them!! (I know you're reading this and you know you aren't welcome here.)
I have thought about writing and sharing a post about all of that nonsense, exposing the cruelties, and showing the truth versus their lies, but it is hard to finish the post when more has to be added each day. I mean, they even continue to bother me TODAY, making fun of me, trying to bother my marriage, and even commenting on my hair color, all the while, trying to break down my mental and physical health. Like, REALLY?! And these "people" are supposed to be adults? So, as long as it continues, I'll continue to document it, write about it, and eventually I will share a LONG blog post about it, with screenshots and all. Harassment is not a joke. Remember that.
And alas, that is another week in my CRAZY journey. It seems to always be chaos, but I have great friends and (some) great family members that I can actually depend on, blood or not. I am happy with my life, my decisions, and no matter the struggles I am given, I will try to keep searching for that silver lining. :)
Because It Could Be Worse.
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