The Clock Is Winding Down On Medical Marijuana For Kids In Illinois

The Clock Is Winding Down On Medical Marijuana For Kids In This State

Children suffering from epilepsy would be eligible to use a form of medical marijuana under a measure that gained bipartisan approval in the Illinois House this week.

Legislation allowing minors with epilepsy to use cannabidiol, a cannabis derivative, passed 98-18 on Wednesday with support from several Republican lawmakers who had previously opposed the law, the Chicago Sun-Times reports.

Support for legalizing cannabidiol, or CBD oil, is spreading in the U.S. -- even in traditionally conservative states. Florida and South Carolina are considering legislation on CBD oil, already legal for patients with some conditions in Colorado, Kentucky, Mississippi, Tennessee, Utah and Wisconsin.

Meanwhile, the clock is winding down on the Illinois General Assembly's spring session, with little more than a week left for the state Senate to approve the bill.

"It's crucial that the Illinois Senate passes the measure quickly," Nicole Gross, one of the Illinois parents of children who have epilepsy who lobbied for the bill, told The Huffington Post Thursday.

With few options, Gross moved with her two young children from Naperville, Illinois, to the Denver area in December. In Colorado, which has generous CBD oil treatment laws for minors, Gross can use the drug to quell her son's intractable seizures.

"We just don't have time to wait," Gross said. "My son has access to cannabis oil here [in Colorado], but kids in Illinois don't. They're having seizures every day or are in the hospital. It's a matter of life and death."

CBD oil has little of the high-inducing THC chemical found in the marijuana plant, and parents say it lacks the hellish side-effects of anti-seizure prescription drugs. Many have left their home states for Colorado to secure medical marijuana therapy for their children.

Though Gross said she's lucky to have family in Colorado to live with, her husband, Randy, must remain in Naperville for work.

"It puts parents in an extremely difficult situation," Gross said. "You can stay where you are and face the possibly [your child] may not wake up the next morning from SUDEP" -- or sudden unexpected death in epileps -- "Or do you move to another state, but be separated from your home and family?"

Under Illinois' medical marijuana pilot program, the nation's strictest, only those aged 18 and older are eligible for the state's medical marijuana registry, and epilepsy is not among 40 medical conditions that qualify for medical marijuana treatment.

In the few months that Gross' son, Chase, has been using the CBD oil, Gross said he has "60 to 90 percent seizure control," even when he's sick or injured. "You can really see his personality now."

Before getting the treatment, Chase suffered seizures as often as every few seconds. Gross said the seizures are akin to "having a constant electrical shock, like having your brain reset. It's not like passing out, but it's almost like your brain shutting down. And this happens thousands of times a day."

Seizures left Chase unable to play and function independently.

"He can't recall what he was doing a minute ago," Gross said, "For kids who have epilepsy, they have constant headaches. These kids don't understand why this is happening to them. They'll have a seizure and fall and hit the ground and then they have no idea what happened."

Lawmakers who oppose the use of medical marijuana derivatives say they don't want to see the drug legalized further, The Associated Press reports.

But they aren't the only hurdle. Treating minors with medical marijuana remains controversial among pediatricians. Some families have switched doctors just to secure the treatment for their kids.

"I think the biggest struggle will be finding doctors who are willing to sign off on medical marijuana treatment," Gross said.

In addition to doctors, parents will have to ensure marijuana growers cultivate strains of cannabis that are best for epileptic kids -- high in CBD and low in THC -- like the popular "Charlotte's Web" variety.

The Illinois bill initially passed the state Senate in April, but it must be re-approved following changes that would allow medicinal marijuana treatment for minors with not just epilepsy, but other debilitating medical conditions, including cancer and Crohn’s disease.

While Gross said she's happy about the state House approval, she'll feel better once the bill is on Gov. Pat Quinn's (D) desk.

"It's a good place for us to be for now, but we're very eager to come home," she said.

Before You Go

Kentucky
Photo By Douglas Graham/CQ Roll Call
After passing the state Senate earlier this month, a bill to legalize cannabidiol oil in Kentucky -- a state so conservative some of its politicians still talk about marijuana killing people -- is already winning approval in the House, where it's expected to pass. Both the Kentucky State Police and Gov. Steve Beshear support the bill. If passed, the law would allow anyone (even children) enrolled in a U.S. Food and Drug Administration trial to be treated with the oil, which is derived from a part of the plant low in THC and does not produce a "high." The law would also let the state's two research hospitals prescribe and dispense the extract.
Tennessee
In Tennessee, which has voted Republican in every presidential election since Clinton, and where being caught with a single joint can still land you in prison for a year, a medical marijuana bill in the legislature has gotten much more attention than in past years. The Koozer-Kuhn Medical Cannabis Act would let people with such conditions as Crohn's disease and post-traumatic stress disorder possess a one-month supply of weed if a doctor says the potential benefits of the drug outweigh the risks.

"Even in hardcore Republican areas, they want to be able to have medical marijuana," the bill's author, state Rep. Sherry Jones, told HuffPost back in January.

The bill didn't pass this year, but advocates say it made significant progress and stands a good chance for next session. "This year, it had much more discussion in the General Assembly than in years past," said Paul Kuhn, whose late wife, Jeanne, is the bill's namesake. "The Republican leadership essentially told us, 'Hemp this year, medical marijuana next year.'"

A separate bill that would establish clinical trials for CBD oil is making its way through the Tennessee House right now.
South Carolina
AP Photo/Brett Flashnick
In South Carolina, where a person can be sent to prison for up to five years for growing a single marijuana plant even if it's a first offense, a bill to allow the use of cannabidiol for seizure treatment was introduced by state Sen. Tom Davis (R-Beaufort) late last month. Since then, at least six other Republican co-sponsors have signed on to the effort. Whether the bill can become a law is still unclear, however. Gov. Nikki Haley hasn't commented on the measure but has said she does not yet see broader medical marijuana legalization as a priority for the state.
Missouri
AP Photo/Jeff Roberson
Missouri, which has some of the harshest anti-pot laws in the country, has hinted at the possibility of legalizing marijuana this year.

During a recent appearance on CNN's "State of the Union", Gov. Jay Nixon said he thinks "folks are starting to see" the potential benefits of medical weed. In addition, for the first time in history, Missouri is considering a bill to legalize the recreational use of pot. Right now, the bill lets people possess up to a pound of weed, even if they are just using it for fun; however, the lawmaker sponsoring the bill has said his colleagues in the Missouri Legislature may scale the proposal back so that it only legalizes pot for medical reasons. Even so, the law would be a huge step for Missouri, which in 2011 locked up more than 20,000 people, 91 percent of whom were arrested merely for possession, according to the Marijuana Policy Project.
Georgia
In Georgia, where the Republican-controlled legislature is engaged in an enduring fightagainst Obamacareand Medicaid expansion, a bill to legalize cannabidiol nearly became law this year. The state's Republican-dominated House of Representatives voted in favor of the bill by a massive margin (171-4), and the state Senate voted unanimously to pass it as long as it was coupled with a law that would insurance companies to cover pediatric autism. However, House politicians would not budge on the autism insurance measure, and the bill died as the time to pass it expired.

The bill was introduced by state Rep. Allen Peake, a conservative Republican lawmaker who previously told The Huffington Post he'd never smoked marijuana in his life. He said he was compelled to fight to legalize the cannabis oil after a visit with a 4-year-old girlwho suffers up to 100 seizures a day.
Florida
In the Sunshine State, where the Legislature is commanded by Republicans, medical marijuana is almost certain to become legal before the end of the year. A voter initiative to legalize the product will appear on the ballot in November, and polls show that more than 80 precent of Floridians will likely say yes.

However, Florida parents with sick children aren't content waiting around for the ballot initiative to take effect. They have lobbied their legislators to introduce bills to legalize medical marijuana even sooner, according to Ben Pollara, the campaign manager at United For Care, an organization lobbying for legal cannabis in Florida. One of these bills -- a measure to legalize cannabidiol -- was the first piece medical weed legislation to ever be advanced by Florida's Legislature.

State lawmakers have also introduced a broader medical marijuana bill, as well as a bill to legalize weed for recreational purposes.

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