Why People With Disabilities Are Protesting Like Hell

“My disability is not that something’s wrong with me, it’s that the world has not adapted to me,” Pittsburgh disability advocate Alisa Grishman said.
Alisa Grishman writes "The Future is Accessible" on a chalkboard of a neighborhood business.<i></i><i></i>
Alisa Grishman writes "The Future is Accessible" on a chalkboard of a neighborhood business.

This story is a collaboration between HuffPost and The Incline.

In cities across America, people with disabilities face uneven access to buildings, transportation and leisure activities. Change isn’t coming fast enough, and activists worry that lawmakers are in the process of watering down the protections that do exist.

In Pittsburgh, where accessibility is mediocre at best, local advocate Alisa Grishman can attest to the city’s problems. Grishman, who uses a wheelchair and a walker, pushes for improvements to the city’s sidewalks and local businesses — and she urges local politicians not to get complacent about the status quo.

“The city has not been changing at an appreciable rate,” said Grishman, a resident of Pittsburgh’s Uptown neighborhood. “One of the things I’ve said countless times is: The longer you live, the more likely it is that you’ll become disabled at some point. Everyone from homeless veterans to Donald Trump himself, anyone can become disabled at any point. And if we just thought in those terms, I wouldn’t have to do this work.”

Last year, a WalletHub analysis of the best and worst places for people with disabilities ranked Pittsburgh 53rd out of the country’s 150 most populous cities — a rating that’s even worse than it appears at first blush. Pittsburgh earned a dismal 51.98 out of 100 total points. In fact, even the highest-scoring cities notched fewer than 62 points.

Grishman is an activist and has been fighting to make Pittsburgh more accessible for people with disabilities since 2014. "Pe
Grishman is an activist and has been fighting to make Pittsburgh more accessible for people with disabilities since 2014. "People don't want to see disability because it reminds them of their own mortality," she says.

This as the Americans with Disabilities Act, a landmark piece of legislation meant to outlaw discrimination based on ability, remains sparsely enforced, inconsistently applied and the target of political revisions advocates say would lessen the law’s impact if successful.

Grishman, 35, is the founder of a local advocacy group called Access Mob and works around the ADA’s enforcement shortcomings by getting Pittsburgh business owners to voluntarily make ADA-compliant changes. She does this by convincing them that accessibility is better for their bottom line. She also wants to make accessibility issues more prominent, better understood and more of a political necessity.

And while she tends to favor subtler methods of advocacy at home, she isn’t afraid to make noise when necessary. She’s been arrested five times at protests as a member of ADAPT, a national disability rights organization.

“I’m a lover and a fighter,” she explains.

We spoke to Grishman about her work, the state of disability rights and how Pittsburgh is a microcosm for much larger issues around access. Excerpts from our conversation are below and have been edited for clarity and length.

How is Pittsburgh doing in terms of accessibility?

Some parts of Pittsburgh are good, some parts are not. It is hard with a wheelchair, compared to other cities, because Pittsburgh is so hilly. At least I have a motorized wheelchair. I know a few people with manual wheelchairs who switch to motorized in the winter, especially, because the hills are so difficult.

In this city, sidewalks are the property of the homeowner, and they’re responsible for repairs. We have a lot of problems because reporting it is a hassle, and getting people to come out and fix it is a hassle. Some property owners can’t afford to fix it. I don’t report things in front of houses where it looks like the owners couldn’t afford the repairs. And I would happily pay more in property taxes to have the city own the sidewalks. I think that would be tremendous in terms of getting repairs and shoveling done. In my parents’ town in New Jersey, part of their taxes go to the city-owned sidewalks. When it comes time for a sidewalk to be repaired, you just contact the city, and they fix it.  

On the other hand, Pittsburgh has a really robust paratransit system.

What are some of the things you want to see fixed and addressed or changed to make the city more accessible overall?

I’m a member-elect of the City-County Task Force on Disabilities, which was created to be the first group the city reaches out to for any project to ensure standards are met. I cannot list a single time the city came to us first, instead of apologizing to us later for having messed things up. They spent all this money to put in protected bike lanes, only to have to rip some out and repair the ground because it turned out they were blocking paratransit. Had they come to us in the first place and said ― “Here’s this plan, does it work?” ― we could have said no and saved them the money.   

Grishman says the city now has an app called "Myburgh" where she can send in pictures and locations of sidewalks that need fi
Grishman says the city now has an app called "Myburgh" where she can send in pictures and locations of sidewalks that need fixing. "Anytime I see something I can't get past, I take a photo of it," she adds.

Tell me about your advocacy group Access Mob ― what is it dedicated to? Access Mob seeks to encourage businesses to change with education and economic incentives. If you convince a business why they need to make changes, they’ll do it wholeheartedly, and they’ll welcome you instead of just accommodating you.

The ADA is a very complaint-driven law. If you want to change something you have to sue and (a) that gets exhausting for people who have to do the suing, and (b) it makes you a bit of a pariah with all the businesses you want to change.

The tagline I always give is, “You catch more flies with honey than vinegar.” I like sitting down with businesses to say, “Hey, could you make this change?” If they balk or refuse, what I love to do is have something called an “unprotest,” where we have people outside saying, “We want to spend our money here.” Who’s going to be upset with that? And if they keep fighting changes, that’s when we get more drastic and send people over for a proper protest.  

There are some businesses that just don’t know the law or what they can do or should be doing. A local sushi restaurant owner once said, “My place is accessible, I put in a whole new bathroom.” He was getting very upset over still being called out for not being accessible. One day he was at a meeting with another local activist, D.J. Stemmler, who explained, “I can’t get into your restaurant to buy anything,” and the owner said, “We’ll just pick you up.” D.J. said, “My wheelchair alone weighs 300 pounds and you’ll either hurt yourself or myself or your employees.” The owner looked like he’d never thought of that before.

I’ve met with about a dozen businesses, and maybe six or seven have made some sort of change, including small changes like the addition of Braille or online menus.

Access Mob has a core membership of about 25 people. If I just announced there’s a thing happening, around 40 people will show up.

What has your work focused on in Pittsburgh lately?

I go to a lot of City Council hearings. A lot of things have needed fighting about, and I’ve been there.

Permits, Licenses and Inspections is currently updating their building codes in general for the first time since the early 1980s, and the worst thing is that there are zero mentions of the ADA in the new version of the codes, despite the fact the ADA passed in the 1990s. The head of PLI, they have been fighting all of our efforts to get accessibility into the codes.

For the first public hearing on this, we had about 15 people in wheelchairs, plus other disability advocates in attendance. We’re working now on getting the state involved because we’re trying to get the state to change some of its universal construction codes.

 [In response, a representative for the Pittsburgh mayor’s office said, “The city obviously supports ADA standards in building codes. ... Cities are barred by federal law from enforcing the ADA in their own codes. We have urged advocates to work with us to lobby the state to make changes to its accessibility codes, with little success.”]

Various buttons from different social causes adorn Grishman's bag.<i></i><i></i>
Various buttons from different social causes adorn Grishman's bag.

What’s the response like when you challenge elected officials or government entities?

Some officials roll their eyes when they see me show up at a meeting. I’ve made a couple of them cry.  

How has the city been changing since you’ve been doing that work?

We have a lot of advocates placed in positions of power now. There’s getting to be more and more people with disabilities who have placed themselves in parts of the government or who are doing advocacy work, and gradually this is becoming normalized.  

What are the barriers to the work you’re doing?

So far, Access Mob has been entirely funded out of my own pocket.

When it comes to disability advocacy and self-advocacy, a lot of people, including me, find it hard to do the actual work because they’re often in too much pain and too tired to go to advocacy events.

So it’s money, it’s health and just getting people on board with our vision.  

Is society overall moving in a more inclusive direction?

It comes and goes, ebbs and flows. There’s been a boom in TV’s depictions of disabled characters, with shows like “The Good Doctor,” “Speechless” and “Glee.” There is a growing consciousness, but at the same time when you look at what’s going on in the government and the [proposed] cuts in Medicaid and Medicare, all these government decisions where either we’re an afterthought or deliberately excluded, as long as that keeps happening, I think our whole society suffers.

To cross streets, Grishman has to use crosswalks where there is an incline for her wheelchair.<i></i><i></i>
To cross streets, Grishman has to use crosswalks where there is an incline for her wheelchair.

Are you ever frustrated?

All the time. I spoke at the Women’s March in Pittsburgh this year about getting out the vote and how so many polling locations are labeled “accessible” but aren’t. A lot of people don’t understand what accessibility really is. I had a fight with the judge of elections, the head of my polling location, and they said, “Just lift your walker up,” and I said, “No, the step is too high for me, get the goshdarn ramp.”  

It’s been an uphill battle. But I keep coming. They hate me for that but I don’t care. I don’t give up easily.  

When is your work done?

My deathbed, probably. To me, a perfect world is a world where I am not disabled, and by that I mean, my disability is not that something’s wrong with me, it’s that the world has not adapted to me.

Eyeglasses are a disability accommodation. People with some form of vision impairment, they wear glasses and they can see and drive, that’s a disability accommodation, but we don’t think of it as such because it’s been so normalized in our culture.

I would love a world where I’m not needed and where I can sit and knit all day ― actually, I do that anyway, but you know what I mean.

The best thing would be a world where I’m welcomed and not just accommodated.