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WATCH: One Family's Journey with SMS

One very rare disease and a family's curious questions on Google search was the start to this loving foundation. After 15 months of noticing something was not right with their baby, Jennifer and Christopher Iannuzzi finally got a diagnosis: Smith-Magenis Syndrome.
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One very rare disease and a family's curious questions on Google search was the start to this loving foundation. After 15 months of noticing something was not right with their baby, Jennifer and Christopher Iannuzzi finally got a diagnosis: Smith-Magenis Syndrome. Also known as SMS, which so far is incurable, is a rare microdeletion development disorder that affects many parts of the body. It includes mild intellectual disability, distinctive facial features, sleep disturbances and behavioral problems.

With some research of her own, Jennifer was able to learn more and start the SMS Research Foundation. They are hoping to raise funds to get more information and hopefully one day a cure for this relatively new disease. Jennifer and the Iannuzzi family were strong enough to share their story, only to give hope to others dealing with this disease!

This video was produced by Tracy Chevrier and shot/edited by Chris Panton. To see more inspiring family stories, visit our YouTube page!