Ady Barkan, a health care activist dying of ALS, testified before the House Rules Committee in support of "Medicare for All."
In just 16 months, I lost my mom to an unspeakably savage disease with no cure.
Actress Gal Gadot is being criticized as ableist by people with disabilities and their advocates for her comments suggesting Stephen Hawking was limited by his wheelchair and motor neurone disease.
The way our media portrays disability is fraught with ableism, if disability is depicted at all.
Whether he’s protesting bad legislation or the Fed’s monetary policy, Ady Barkan boils the issue down to its moral essentials.
And Jay has the audacity to put us all together in the Frosty perspective. He sees how he is fortunate to be living and cherishing
GPS for the Soul
The day was full of excitement and anxiety. I was hoping for nothing out of the ordinary--only smooth sailing, and drama
GPS for the Soul
When I was diagnosed with ALS, I was given two years to live. Two and a half years later here I am typing this article using my eyes, while being fed through a tube in my stomach and wearing a breathing mask to give my diaphragm a break. I am one of the lucky ones, and I'm thankful for that.
But below that catastrophic category is all of this slivers of loss that never find their way into ALS brochures or discussions
The AFTD is one of our closest allies in the fight against neurodegenerative disease, and our oldest partner. After more
Food & Drink
When Parker publicly announced his illness in 2013, it sent ripples of sadness to the whiskey community. Many distillers, writers and fans have since raised money and awareness in honor of Parker, who is so revered and loved that we often cannot hold back the tears when discussing his plight.
Before last Christmas, I would look around any room full of people and notice one thing they all had in common. And I mean
162 - This has little to do with ALS, but I love watching the Chicago Cubs play, and they play 162 games. So, that's nice
I will not let ALS stop my mother from making a difference in people’s lives.
Today, Swanson is my companion who looks to me for direction and who gets excited when she completes tasks. She infuses my heart with gratitude and her energy is contagious.
Traveling with a paralyzing, terminal illness is not for the faint of heart. Here are 10 things you should know if you want to defy (or just completely ignore) the limitations of your disability.
This may seem like a title that is overly obvious: of course when we die we lose control. However there are things we have a say over, as in what we leave behind and who gets to share in it.
When Bruce Kramer asked Emmy-award winning Minnesota Public Radio host Cathy Wurzer whether she'd follow his journey toward the end of his life, she hesitated -- then said yes. It was a decision that was life changing for both.