Amyotrophic Lateral Sclerosis

Frates, diagnosed with Lou Gehrig's disease in 2012, launched a fundraising movement that attracted celebrity participants and donors worldwide.
Ady Barkan, a health care activist dying of ALS, testified before the House Rules Committee in support of "Medicare for All."
In just 16 months, I lost my mom to an unspeakably savage disease with no cure.
After the memorial service, his voice was set to be beamed into space.
Actress Gal Gadot is being criticized as ableist by people with disabilities and their advocates for her comments suggesting Stephen Hawking was limited by his wheelchair and motor neurone disease.
ALS attacks and kills nerve cells controlling muscles, leading to weakness, paralysis and, ultimately, respiratory failure.
Most people only live three to five years following an ALS diagnosis.
“You can’t do everything that you used to be able to do, but you can still experience new places, foods and cultures.”
They don't always sway the general public, but key people are paying attention.