Amyotrophic Lateral Sclerosis
In just 16 months, I lost my mom to an unspeakably savage disease with no cure.
After the memorial service, his voice was set to be beamed into space.
ALS attacks and kills nerve cells controlling muscles, leading to weakness, paralysis and, ultimately, respiratory failure.
Most people only live three to five years following an ALS diagnosis.
“You can’t do everything that you used to be able to do, but you can still experience new places, foods and cultures.”
They don't always sway the general public, but key people are paying attention.
He says he suspects football caused it.
"My family and I are grateful for the outpouring of love and support."
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That spirit of beauty overcoming the beast is what charged ALS activist Suzi Hoffman-Kipp to create an LA-based Art for ALS