Batten disease

“Annie has a way of giving hope when we feel we need it most.”
To join the challenge, all you have to do is break something -- whether it's breaking a pencil, breakdancing, or breaking a record -- and nominate your friends to do the same, much like the ALS Ice Bucket Challenge. The goal is to raise awareness and donations at the same time.
"You're looking at your very healthy vibrant children who are loving life right now, who could potentially lose all of that
Watching him skip and jump, I promised myself I would continue to be inspired by this family. On those long days when I'm convinced I lost the genetic lottery with autism, I will remind myself that this not a game to win or lose, but a life of love and hope and possibility.