AllTrials, a project launched in the UK, advocates that all clinical trials should be listed in a clinical trials registry, and their results should always be shared as open data. Why? To prevent disasters like ones in the past.
Sometimes, as I'm talking to patients and their families, I realize that I have no idea what I'm talking about. Really.
When 75 percent of our medical costs are for chronic diseases that are largely due to poor lifestyle habits, where are the studies on prevention? On behavior? On effective patient-doctor or public health strategies?
At present, most drug company records are treated as proprietary secrets. As a public health measure, drug companies should be required to make public all of their internal documentation concerning any drugs that begin the FDA approval process.