Let's hope that the Millions Missing ME movement will finally convince everyone of the seriousness of this overlooked disease and garner the respect and support that will allow its victims to resume their lives
The gravity of this moment in time feels hidden. I don't want to hide anymore.
But more action is needed. Will any of the Chronic Fatigue Syndrome Advisory Committee's recommendations be implemented by the Department of Health and Human Services?
In the holiday season, my thoughts are about those who suffer from Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
Unfortunately, thanks to the cultural stereotype of the super-harried, super-drained superwoman, direct questions about energy and fatigue levels may not be asked during physicals, and patients, accustomed to incessant lethargy, forget to broach the topic altogether.
Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire?
The real suffering is unseen; the real sufferers cannot make it to the table -- or dare not for fear that the outing will cost them later. The brave face can mask the deepest hurt.