Do you have info to share with HuffPost reporters? Here’s how.
That's a question I would have asked as recently as early November of this past year. Unfortunately, I am now all too familiar with what it is. I have 26 year old fraternal twin daughters who were just diagnosed with this devastating genetic disorder. My husband and I were unsuspecting carriers of a recessive gene.
HEALTH AND FITNESS
I know almost every one of my pet loving clients has searched the Internet to better understand why their pet is not feeling well. I would speculate that around 50-60 percent of the time my clients are in the vicinity of the right diagnosis. However, nearly 40 to 50 percent of the time they are not.
I've shared stories with parents whose children, like my own daughter, have or have had a brain tumor. Many parents say that it took weeks, or even months, for their children to be correctly diagnosed. In our case, we were one of the "lucky" ones -- although I hesitate to use that word because my child died, albeit five years after diagnosis.
Take care of ourselves? Perhaps that's the one thought that trumps all others, and probably the one thing that parents of sick kids, especially sick adult kids, lose sight of. And it's probably the only thing in this whole horrifying cancer dance that a proud parent can actually control to some degree.