Let's hope that the Millions Missing ME movement will finally convince everyone of the seriousness of this overlooked disease and garner the respect and support that will allow its victims to resume their lives
But more action is needed. Will any of the Chronic Fatigue Syndrome Advisory Committee's recommendations be implemented by the Department of Health and Human Services?
I found out recently an old friend of mine, Whitney Dafoe, has a severe disease. He'd posted on his website that he was sick, but when he'd said "Chronic Fatigue Syndrome," I thought that meant normal or mundane tasks overly exhausted him and that was the end of his affliction.
Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire?
Nothing is more damaging to research than funding instability. The universities and many research laboratories -- including those run by the government -- operate like concertinas. They expand and contract according the whim of Congress.
There is something elusive in the nature of the illness such that unless you live it, or live with and care for someone who does, it's almost impossible understand or describe. You might come close after decades of treating patients. At every turn, language fails.