Eliza's story is helping other kids like her.
Family time, as it is for many people, used to be limited to nights and weekends. We now get tons of time together, but our days like this are quite literally numbered. Each new day is a step backwards for my daughter.
My husband and I can't help but wonder if we're doing the right thing. Given the normal course and degenerative nature of Sanfilippo Syndrome, now is Eliza's best time to actually be able to do things out in the world. With our decision to not go out, we are taking those experiences away.
But not if her parents, Glenn and Cara O'Neill, have anything to do with it. For the last few months, they've worked tirelessly
In an email to The Huffington Post, dad reiterates how hopeful they are that they'll be able to save their daughter's life
Now, 7-year-old Beckham is asking for more contributions. "We really need you to help us get my sister the medicine quickly
Dad explains that the experience has changed their whole perspective on life. "So many wonderful people out there willing