Sharp Toe Nails, Rough Whiskers, Heavy Legs And Other Physical Conditions That Can Block Snuggling In Bed
So despite the ideal many people have of snuggling happily in bed at night, there are some people who would rather not snuggle or who have to be very careful about snuggling because of something physical about their partner.
Rafi was born with Epidermolysis Bullosa, a rare genetic connective tissue disorder that results in extremely fragile skin and blistering. Even the slightest contact can tear the skin or cause blistering.
EB is a rare condition, sometimes called an "orphan disease". This is a good news/bad news situation: we want it rare, because no child should have to suffer such continual pain--but it also means the number of patients wanting cure may be too few to attract corporate money.
Rubber band jewelry can be a force for good.
Rashes and patches on the skin A handful of skin changes have been commonly associated with internal diseases. When people
"There needs to be a cure," father, Brendan Murray explains. "One in 50,000 babies gets [EB]. It's rare, but it's still out
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