spina bifida

Thirty years ago, this probably wasn’t supposed to happen. The survival rate for kids like me wasn’t that great. Now, it’s
We are sold the idea that remaining slim is primarily important as a means of attracting the opposite sex, rather than as a path to good health and longevity.
No one is being cruel. In fact, everyone is being positively dramatically spectacularly kind. Do their stares and smiles and comments make you angry? Of course not. But they do make you a bit, well... tired. Because you very quickly realize that it's not just your baby that everyone is watching. They're watching you too.
"She didn’t know in the beginning till we told her, 'This is for you' and then she looked up and got all excited," Marzano
Bryan hopes that people who read his story will feel inspired to "never give up," he said. "We live once, so make the most
By all means, doctors and public health advocates should continue to make sure that women of childbearing age take their folic acid. But I'm not interested in using my beautiful child to scare folks into doing it.
The words marched across the page, cold and unfeeling like a barricade. No way around them, no hint of subtlety to their meaning, no chance to rearrange the letters and make them right.
All the kids swing. All the kids slide. All the kids run and play. But only one of them is constantly falling down and, it turns out, she's starting to notice it too.
For the past six years, Cassie McLelland has been dressing her son's wheelchair in clever Halloween costumes, like Batman
Voldemort is so freaking scary that if you even speak his name, all manner of horrors could rain down upon you. The kids at Hogwarts knew better than to mess with him because, just like we teach our kids in the real world, it's best not to talk about bad things.
I felt it more than I heard it. Deep in my stomach, in that place right below my breastbone. The place where I keep all my fears and my sadness. I felt it like a kick in the ribs.
Believe me, I am not diminishing my work as a mother. I am not pretending that my son is just like everyone else. But when we glorify his friends, or his mother, or his one-day prom date, we imply that he is less-than.
I write a lot about Spina Bifida, I read a lot about Spina Bifida, and I like to connect with other folks dealing with the same things. By putting it in my profile, and also by hashtagging my photos, I can find other families who also inhabit the world of SB.
We're talking about our children -- an arrangement that's supposed to be unconditional -- and as long as they're healthy! is alarmingly conditional. Everyone's happy for a new baby and congratulations are in order -- but only under certain criteria. Right?
Know what I think? This thing is freaking great. It's a masterpiece. Potty training is hard, with a bowel program or without, and whatever keeps your kid socially continent and potty-trained before they go to kindergarten, I'm all for.
How can people who may not have amazing dads in their lives grow up to be or expect to co-parent with amazing dads if we don't see dads being normal and amazing in our lives?