spinal muscular atrophy
Hollywood can be an "ableist dumpster fire," says activist Alice Wong.
It’s always been me and my brother, Justin. Either us against the world, or as kids, us against each other. We’re only 11
We had to muster up the courage to live life with fear and grief as a constant companion because our child deserved a life that was defined by the joy in it, not the number of years.
“I wasn’t able to keep up, so I thought I had to quit. But then we ended up finding an answer.”
I know not everyone's story is the same. Some siblings may have better coping skills to deal with the ups and downs. Some people are naturally good at looking at the bright side, while others need some help finding the light... and that's OK too.
God gave him a body that doesn't quite work. A body that tries to fail him over and over again. Throughout every medical leave and hospital stay, Apple sticks by him. Anytime his health declines, he always has the same goal in mind; to get back to work at Apple.
Service dogs quickly become an extension of ourselves, and I felt that instant connection when we first met. As I took a breath of relief, I remember Jennifer looked at me and said, "I promise you're going to love her. Her name is Wish, and she's an absolute sweetheart."
"Just by being you, you make this world better."
My son Roman never cries. He is paralyzed, but he has the heart of a lion. So when he called tonight, just moments ago, sobbing uncontrollably, I could not recognize the voice.
Kaden, 14 months old, was diagnosed with SMA about half a year ago. He’s never crawled or rolled over and will never walk