spinal muscular atrophy

Hollywood can be an "ableist dumpster fire," says activist Alice Wong.
It’s always been me and my brother, Justin. Either us against the world, or as kids, us against each other. We’re only 11
We had to muster up the courage to live life with fear and grief as a constant companion because our child deserved a life that was defined by the joy in it, not the number of years.
“I wasn’t able to keep up, so I thought I had to quit. But then we ended up finding an answer.”
I know not everyone's story is the same. Some siblings may have better coping skills to deal with the ups and downs. Some people are naturally good at looking at the bright side, while others need some help finding the light... and that's OK too.
God gave him a body that doesn't quite work. A body that tries to fail him over and over again. Throughout every medical leave and hospital stay, Apple sticks by him. Anytime his health declines, he always has the same goal in mind; to get back to work at Apple.
Service dogs quickly become an extension of ourselves, and I felt that instant connection when we first met. As I took a breath of relief, I remember Jennifer looked at me and said, "I promise you're going to love her. Her name is Wish, and she's an absolute sweetheart."
My son Roman never cries. He is paralyzed, but he has the heart of a lion. So when he called tonight, just moments ago, sobbing uncontrollably, I could not recognize the voice.
For parents, participants and museum staff seeing Szot’s work for the first time, the experience was eye-opening. Just playing
My disability is not meant to be understood as something that limits me. In fact, I can confidently say that I believe my abilities far exceed my disabilities every single day of my life. The obstacles brought upon by this disease serve as lessons which can only be discovered in the resiliency I have to overcome them.
Let's begin by pointing out the obvious. I'm different and look different, in which case I find it completely normal that a child gets curious. In fact, I believe their curiosity is a great thing because without being curious and never asking, they'll never know.
At the end of the day, this life is more than I deserve, so with a little humor, I'm here to set the record straight. Being in a wheelchair isn't so bad after all, and I've compiled a list that proves just that!
Stanley has adult-onset spinal muscular atrophy, a condition that has left him confined to his bed for the last two years
Strength is having hope where hope was once lost and holding onto faith even through the darkest of times. It's about finding the strength to move forward and leave your past behind, but never forgetting how you got to where you are in this moment in time.
From the beginning of our time together, Isabel moved my heart deeply. Without spoken language, she communicated through her eyes, the slight lifting of the corner of her mouth to form a little smile, and with movements of her tiny fingers.