A New York-based philanthropy is apologizing for its role 50 years after the study was revealed to the public.
African-Americans are disproportionately affected by sickle cell, but not enough are signing up for clinical trials to help.
The notorious study was referenced in a recent episode of "Black-ish."
To improve the process of ethical oversight of research, we need to change our attitudes, and recognize far more fully that complicated moral issues, strains and vagaries are involved.
Almost exactly seven years ago, on February 28, 2008, Penn State Assistant Track Coach, Fritz Spence, was diagnosed with acute myeloid leukemia (AML). Five months after his diagnosis, following Fritz's second failed round of chemotherapy, Wade Spence donated marrow to his brother.
Science is not value neutral. It depends on democratic values of cooperation, free inquiry, and a commonwealth of knowledge.