Social Stigma For Migraine Sufferers Similar To That Experienced By People With Epilepsy: Study

'Migraine Stigma' Is Real -- And More Severe Than You Might Think
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People who suffer from migraines may suffer the same level of social stigma experienced by people with epilepsy, according to a new study.

"I don't think people realize that it is not unusual for people with migraine to have severe headaches every day -- to be so disabled that they are unable to work," study researcher Dr. William B. Young, M.D., a neurologist at the Headache Center at Thomas Jefferson University Hospital, said in a statement. "This is what causes the stigma -- the fact that people with severe migraine may not be able to work."

The study, conducted in association with Rutgers University researchers and published in the journal PLOS One, included 123 people diagnosed with episodic migraines, 123 people diagnosed with chronic migraines, and 62 people diagnosed with epilepsy.

The researchers scored each study participant's stigma on a "stigma scale," and found that, generally, the scores of the people who suffered from migraines were about the same as those with epilepsy. Researchers also found that chronic migraine sufferers experienced more problems with being able to work than episodic migraine sufferers.

Migraines are not just "bad headaches" -- they also include symptoms of nausea or vomiting, light sensitivity, throbbing, and sometimes even aura (visual disturbances). There are two different forms: episodic, which is defined as having anywhere from 0 to 14 headaches each month, and chronic, which is defined as having 15 or more headaches each month, according to a report on the subject published last year in the journal Current Pain and Headache Reports.

That same report also showed that as many as 14 percent of the general population -- and 18 percent of women -- may be affected by migraines.

"When people treat my patients as if they are to blame because they have a severe, debilitating disease, they are contributing to the problem and making life harder for them," Young said in the statement.

This new finding is likely hardly surprising to people who experience migraine. After all, a study presented at the 2010 annual meeting of the American Headache Society showed that people who experience chronic migraines experience more stigma than people with episodic migraines, as well as those who have multiple sclerosis, stroke and epilepsy.

HuffPost's Laura Schocker previously reported that a possible reason for this is that people tend to conjure up a "certain type of person" when they think of a migraine-sufferer.

"It's often thought of as a weakness of character as opposed to a biological disease," Dr. Jason Rosenberg, an assistant neurology professor at Johns Hopkins Medicine, told Schocker.

Plus, since there is no test for migraine like there is for, say, a disease like asthma or diabetes, people may not think of the condition as "legitimate" when it really is. "It's not like the person is wheezing or there’s a blood sugar test that can come high," Rosenberg told Schocker.

Do you experience migraines? Have you ever been the subject of "migraine stigma?" Tell us in the comments!

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Before You Go

Natural Ways To Ease Migraines
Feverfew(01 of15)
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One of the oldest herbal remedies for migraines, this plant can be used in many forms, included steeped in tea or even eaten raw, according to Alexander Mauskop, M.D., a board-certified neurologist focused on headaches and the director and founder of the New York Headache Center. That's because it contains a powerful chemical called parthenolide, which has been linked to warding off migraines, although Mauskop says science hasn't really offered an answer yet as to how or why,One of the first studies of the herb came out of Great Britain in the 1980s, and found that 70 percent of people who chewed a couple of feverfew leaves each day saw their symptoms improve and experienced fewer migraines, according to the University of Maryland Medical Center.In supplement form -- as long as it contains at least 0.2 percent parthenolides -- 100 to 150 milligrams a day may do the trick, according to a HuffPost blog by Dr. Andrew Weil, because it can help "prevent the release of substances that dilate blood vessels in the head." (credit:Alamy)
Butterbur(02 of15)
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Unlike feverfew, this herb is toxic in any form but the processed supplement, says Mauskop.However, its headache-preventing properties are equally impressive. The chemicals in butterbur are thought to relieve spasms and decrease inflammation, which can cause headaches, according to WebMD. A small 2004 study found that patients who took 75 milligrams of butterbur twice daily had 48 percent fewer migraines, compared to a 26 percent decrease experienced by people given only a placebo. While it's been predominantly researched as a preventive measure, there's some preliminary evidence that it can also help beat a migraine as it's happening. Taking 100 milligrams every three hours (up to 300 milligrams in 24 hours) just might do the trick, according to Psychology Today. (credit:Alamy)
Magnesium(03 of15)
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Mauskop's own research found that people with migraines and cluster headaches are often deficient in magnesium.He demonstrated that an infusion of the mineral helped to stop the pain. Of course, an infusion isn't the most practical of treatments when you're struck by a migraine at the office, say, but supplements can also help. One small study found daily magnesium supplements reduced migraine frequency by nearly 42 percent, compared to only about 16 percent in people given a placebo pill. Some people have trouble absorbing magnesium, says Mauskop, which can lead to the unpleasant side effect of diarrhea, but overall it's considered safe in 200 milligram daily doses, he says. Flickr photo by fdecomite (credit:<a href="http://www.flickr.com/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="33" data-vars-position-in-unit="41">Flickr:</a><a href="http://www.flickr.com/people/fdecomite/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" fdecomite" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/fdecomite/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="34" data-vars-position-in-unit="42"> fdecomite</a>)
Riboflavin(04 of15)
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This B vitamin -- found naturally in foods like milk, meat, nuts and green veggies -- was linked to migraine prevention in a small 1998 study, but in a very high dose, writes Weil, one that would need to be prescribed by a doctor. Riboflavin (and an enzyme that acts similarly called CoQ10) is involved in producing energy inside the cells of the body, Mauskop explains, so it's better to take in the morning to ward off migraines, in case it disrupts sleep. (credit:Alamy)
Omega 3s(05 of15)
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A dose of these healthy fats can fight inflammation, which is a likely culprit in many headaches and possibly some migraines. Everyday Health recommends flax seeds but fish, like salmon, and fish oil supplements may also help. "There are so many other benefits of omega 3s, even if it doesn't help your headaches, there's no reason not to try it," says Mauskop.Flickr photo by http://www.samcatchesides.com/ (credit:<a href="http://www.flickr.com/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="25" data-vars-position-in-unit="33">Flickr:</a><a href="http://www.flickr.com/people/samcatchesides/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" http://www.samcatchesides.com/" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/samcatchesides/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="26" data-vars-position-in-unit="34"> http://www.samcatchesides.com/</a>)
Sniff Peppermint(06 of15)
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As anyone who gets headaches knows, certain smells can trigger the pain. But peppermint in particular seems to have pain-reducing effects, says Mauskop. "It's very individual," he says, and may not work for everyone. Or, it could just mask less pleasant smells. (credit:Alamy)
Ginger(07 of15)
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This spice is well-known for being friendly to upset stomachs, and it can ease migraine-related nausea, too, says Mauskrop. It may also ease pain thanks to some anti-inflammatory properties. Just be sure you're getting the real thing, he says -- ginger ale doesn't cut it. Flickr photo by mfdudu (credit:<a href="http://www.flickr.com/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="20" data-vars-position-in-unit="28">Flickr:</a><a href="http://www.flickr.com/people/mfdudu/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" mfdudu" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/mfdudu/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="21" data-vars-position-in-unit="29"> mfdudu</a>)
Rubbing The Temples(08 of15)
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There may not be a body of research to support a simple head rub, but there's no denying it feels good! People instinctively rub their temples in the throes of a headache, and if it works for them, why not? "Whatever feels good, do that!" says Mauskop. (credit:Alamy)
Massage(09 of15)
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In a similar vein, a whole-body massage can help, too. Part of that is likely due to the stress relief, as tension is a known headache trigger. A small study found that frequent migraine sufferers had fewer headaches following six weekly massage sessions. However, it's likely that you'd have to continue the relaxing practice -- indefinitely -- which could get pricey! (credit:Alamy)
Meditation(10 of15)
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One way to reap the stress-reducing benefits for free is a quiet meditation practice, says Mauskop, who lists meditation as one of his top two natural migraine treatments. There remains little concrete evidence that meditation in particular can ease the pain, Health.com reported, but it is certainly a proven stress reliever. (credit:Alamy)
Drink More Water(11 of15)
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Plenty of headaches are triggered by dehydration -- so much so that Mauskop says he has patients who will quickly drink a few glasses of H2O when they feel a migraine coming on, and actually stop it in its tracks. "They know to catch it early," he says, "that definitely can help."Not a huge water fan? There are plenty of ways to snazz up a glass or trick yourself into sipping more throughout the day here. Flickr photo by Greg Riegler Photography (credit:<a href="http://www.flickr.com/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="11" data-vars-position-in-unit="19">Flickr:</a><a href="http://www.flickr.com/people/gfrphoto/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" Greg Riegler Photography" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/gfrphoto/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="12" data-vars-position-in-unit="20"> Greg Riegler Photography</a>)
Acupuncture(12 of15)
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There have been mixed results in the research examining this ancient Chinese medicine's effect on migraines. Most recently, a study questioned whether the traditional practice offered much more than a placebo effect, perhaps due to the extra attention lavished by the acupuncturist. Proponents maintain that the needles trigger pain-reducing chemicals, Reuters reported, but all those visits could become time consuming and expensive, points out Mauskop. A DIY altnerative might be acupressure, he says. Try pressing on the webbed space between your thumb and pointer finger. It may only be temporary, but it can offer relief. (credit:Alamy)
Caffeine(13 of15)
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"Caffeine is a double-edged sword," says Mauskop. If you're too dependent on multiple cups of coffee a day (or even frequent doses of certain headache medications formulated with caffeine) you're likely to experience rebound headaches when the jolt starts to wane. However, in small doses, a little bit can help reduce pain. Flickr photo by OiMax (credit:<a href="http://www.flickr.com/" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="6" data-vars-position-in-unit="14">Flickr:</a><a href="http://www.flickr.com/people/oimax/" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" OiMax" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/oimax/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="7" data-vars-position-in-unit="15"> OiMax</a>)
Regular Exercise(14 of15)
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Along with meditation, Mauskrop calls staying active one of his top two most effective ways to prevent and treat migraines. Of course, many people are in too much pain in the middle of a headache to even think about heading to the gym. But a few people have told him when they feel something coming on, they can go out for a jog and avoid the migraine altogether. "It relaxes you, it releases endorphins," he says. Last year, a small Swedish study attempted to find out just how good exercise is at preventing migraines and discovered a solid sweat session was just as effective as migraine medications at keeping the debilitating headaches at bay. Flickr photo by Dafydd359 (credit:<a href="http://www.flickr.com/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name="Flickr:" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="2" data-vars-position-in-unit="10">Flickr:</a><a href="http://www.flickr.com/people/dafydd359/" target="_blank" role="link" class=" js-entry-link cet-external-link" data-vars-item-name=" Dafydd359" data-vars-item-type="text" data-vars-unit-name="5b9cba30e4b03a1dcc8141c7" data-vars-unit-type="buzz_body" data-vars-target-content-id="http://www.flickr.com/people/dafydd359/" data-vars-target-content-type="url" data-vars-type="web_external_link" data-vars-subunit-name="before_you_go_slideshow" data-vars-subunit-type="component" data-vars-position-in-subunit="3" data-vars-position-in-unit="11"> Dafydd359</a>)
Cool Down -- And Warm Up(15 of15)
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Many people will feel a chill when they get a migraine, explains Mauskop, while at the same time their heads feel "hot and cloudy" he says. For some temporary relief, try reversing the feelings -- cool your head with an ice pack while warming the body in the bath, he suggests. Granted, it's not very practical unless you're at home and have plenty of time, he says, but dilating the blood vessels in the body may help blood flow away from the head and reduce some of the pain, he says. (credit:Alamy)

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